How Values Shape Collaboration Between Patients with Multiple Chronic Conditions and Spousal Caregivers


論文アブストラクト:Individuals with multiple chronic conditions (MCC) collaborate with spousal caregivers daily to pursue what is most important to their health and well-being. Previous research in human-computer interaction has supported individuals with chronic conditions or their caregivers, but little has supported both as a unit. We conducted a field study with 12 patient-caregiver dyads, all married and living together, to identify partners' values and how they shape collaborative management of MCC. Partners' coinciding values motivated them to empathize with and support each other in the face of challenges related to health and well-being. When their values were asymmetric, they perceived tensions between individual autonomy and their ability to coordinate with their partner. Systems to support partners in this context could help them overcome asymmetric values, but should balance this with support for individual autonomy.


複数の慢性疾患にかかった患者と,その介護者の間の価値観の違いが,治療の向き合い方に及ぼす影響を調べた研究.価値観が一致した時,共通目的に向かう行動が促進 され,そうでない場合2者間の自律性と協調性に緊張が生じた.