Patient Strategies as Active Adaptation: Understanding Patient Behaviors During an Emergency Visit


論文アブストラクト:Although the ability of patients to access their health information during ongoing care is considered crucial for better health outcomes and increased satisfaction, the current care model places patients in a passive role. To investigate the patient experience in the hospital environment where information is lacking and in accessible, we conducted an ethnographic study with patients, caregivers, and healthcare providers in the emergency care setting. We report the three types of information breakdowns ED patients encountered during their emergency visits and the strategies they developed to cope. Our findings reveal a rich picture of the coping mechanisms ED patients use to proactively adapt to the nature of the ED care context. This work expands upon our understanding of the unique information challenges ED patients face, as well as the important adapting behaviors they engage in; it also uncovers design opportunities for supporting crucial, yet unmet, patient information needs.