Session:「Family Care」

How Information Sharing about Care Recipients by Family Caregivers Impacts Family Communication

論文URL: http://dl.acm.org/citation.cfm?doid=3173574.3173796

論文アブストラクト: Previous research has shown that tracking technologies have the potential to help family caregivers optimize their coping strategies and improve their relationships with care recipients. In this paper, we explore how sharing the tracked data (i.e., caregiving journals and patient's conditions) with other family caregivers affects home care and family communication. Although previous works suggested that family caregivers may benefit from reading the records of others, sharing patients' private information might fuel negative feelings of surveillance and violation of trust for care recipients. To address this research question, we added a sharing feature to the previously developed tracking tool and deployed it for six weeks in the homes of 15 family caregivers who were caring for a depressed family member. Our findings show how the sharing feature attracted the attention of care recipients and helped the family caregivers discuss sensitive issues with care recipients.

日本語のまとめ:

被介護者(患者)の情報を家族介護者間で共有することが、患者家族間でのコミュニケーションにどのように影響するかを調査した。著者らが開発したアプリを使用して15人の家族介護者に対して6週間の実験を行った結果、患者と家族での繊細な問題に関する議論の助けとなった。

Family Health Promotion in Low-SES Neighborhoods: A Two-Month Study of Wearable Activity Tracking

論文URL: http://dl.acm.org/citation.cfm?doid=3173574.3173883

論文アブストラクト: Low-socioeconomic status (SES) families face increased barriers to physical activity (PA)-a behavior critical for reducing and preventing chronic disease. Research has explored how wearable PA trackers can encourage increased activity, and how the adoption of such trackers is driven by people's emotions and social needs. However, more work is needed to understand how PA trackers are perceived and adopted by low-SES families, where PA may be deprioritized due to economic stresses, limited resources, and perceived crime. Accordingly, we conducted a two-month, in-depth qualitative study, exploring low-SES caregivers' perspectives on PA tracking and promotion. Our findings show how PA tracking was impacted by caregivers' attitudes toward safety, which were influenced by how they perceived social connections within their neighborhoods; and cognitive-emotional processes. We conclude that PA tracking tools for low-SES families should help caregivers and children to experience and celebrate progress.

日本語のまとめ:

社会・経済的地位の低い家族は慢性疾患を防ぐ行動を起こしにくい。本研究では行動計測装置を利用することの介護者の考えと、行動促進の効果を確認するため2ヶ月の調査を実施した。結果、介護者の安全の観点での行動変容を促し、地域の人々の社会的関係性についての考え方に影響を与えた。

Exploring Co-design with Breastfeeding Mothers

論文URL: http://dl.acm.org/citation.cfm?doid=3173574.3174056

論文アブストラクト: Designing mobile applications for breastfeeding mothers can be challenging; creating spaces to foster co-design -- when a mother's primary focus is on her child rather than on design activities - is even more so. In this paper we discuss the development of the Milk Matters mobile application, a tool developed to motivate women to donate their surplus breast milk to the local milk bank. We look at the importance of different approaches to understanding the mothers, comparing workshops, surveys, and cultural probes. Through our work we identify three factors to consider when co-designing with and for mothers: 1) interrupted interactions 2) elements that might distract a baby and 3) the importance of empowering mothers through positive reinforcement. Based on these factors we examine our methodological approaches, suggesting ways to make future research with breastfeeding mothers more productive.

日本語のまとめ:

授乳中の母と共に、余った母乳を寄附するアプリ”Milk Matters”のデザインを行った話。アプリは実際に開発されGoogle Playで公開されている。“Milk Bank”というムーブメントがあり、人の母乳を集めて適切に管理し、NICUの子供に配る活動をしているらしい。

Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies

論文URL: http://dl.acm.org/citation.cfm?doid=3173574.3174065

論文アブストラクト: While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in 'Parkinson's Radio' -- a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for conducting co-inquiry in HCI research.

日本語のまとめ:

パーキンソン病患者支援グループおよび患者との16ヶ月にわたる”co-inquiry”に関する取り組みを紹介している。健康に関する情報を提供するParkinson’s Radioの取り組みや、これができるまでの道のりについて紹介している。